Celebrate the Joy in life NOW…RIGHT NOW
Update: For those who are not aware yet, Dawn passed away yesterday almost as I was writing this. We wish strength and love to her husband Mike and her boys. Our family doesn’t get it sometimes....
View ArticleThe Vest Family Needs Your Help- As Do 1.5 Million Others
It was just after BlogHer ’09 when I had to stay in my room and invite people over because going out was too hard, and I landed in the hospital for the first time due to Lupus. It was scary. We didn’t...
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Lupus Awareness Month. You Want a KickOff Post? You Got One
It hits me at the oddest times. Not ever when there is an IV in my arm or when I’m talking to a therapist…but like, just now…when I see the photo of a beautiful newborn. And this heaviness crushes my...
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I’d Like That Hollywood Ending Too
I almost wish I had cancer instead of Lupus. It’s one of the many reasons my family is going to Washington DC in June. Because unlike Angelina Jolie I can’t make a brave decision (which I applaud...
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Humiliation on Wheels
Swallowing my pride. That’s how I feel every single day I step out of the house. Some days are better than others. I feel stronger, I feel thinner, I feel like I’m wearing armor. Inevitably it all...
View ArticleGetting Ready to Head to DC for Lupus Advocacy Day
To learn more about Lupus Advocacy Day you can visit the Lupus Foundation.
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We Have Work To Do: National Lupus Advocacy Summit 2013
My hands are a bit swollen tonight. Might be the heat. Probably is the arthritis. More than likely it’s a combination of the heat and Reynaud’s and the steroids reacting to the total nerve of my doing...
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The Vest Family Goes to Washington
It will come as zero surprise to you, my dear readers, that I have trouble sitting still. From the minute I was diagnosed with Lupus, I knew I had to do something and do something big. There was no way...
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Welcome to Hotel Henry Mayo
I am still trying to wrap my head around what happened. What went wrong. Except nothing went wrong. At least, not that I can pinpoint just yet. I got a stomach bug. Just a simple stomach bug. I was...
View ArticleFrom Exercise-Fiend to Vegan: Moving Forward
I spent the better part of the day trying to figure out how to change. Should I go vegan? Vegetarian? Should I try getting up at 5am every morning and walk to the end of the block again? Then in a week...
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Living with Lupus: Reclaiming Me
Taking back my life from Lupus is no easy task. But I’m doing it. Slowly. Piece by piece. Part by part. Brick by brick. I’ve learned to manage the ups and downs of the pain. Which, truth be told, has...
View ArticleOf Leeches and Heroes
I get a lot of emails. Especially now that I’ve gone public with my illness and the hardship it has brought on my family. Some emails lift my spirits in ways I can’t explain. Others who understand how...
View ArticleBetrayed by the President & Obamacare? Try SAVED Instead
My KINGDOM for a $373 a month premium and ONLY $1,500 maximum out-of-pocket in order to take care of myself and the Lupus inside of me!!! That is what fellow Lupus sufferer Emilie Lamb is complaining...
View ArticleWhy Do You Blog? The Answer is Magical
So why are you still blogging? Are you hoping to make money? Become famous? Gain followers? Fans? A book deal? Are you blogging because you want to share your family with relatives scattered across...
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The Beauty of Survival: Merck for Mothers, BlogHer, My Daughter & Me
It’s funny how life works out, and I mean the word life in every way possible… in every breathing, heart-filled sense. About a decade ago I was bedridden and pregnant with my daughter. We weren’t sure...
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